In January, Anderson was diagnosed with GERD. He was put on Zantac, and when that wasn't controlling his reflux well enough he was put on Prevacid. At birth, he failed the newborn hearing screen. Ever since we have been going to the audiologist/ENT for testing. He continually failed OAE(Otoacoustic emission) testing, so in February he had ABR(Auditory Brainstem Response) testing. The ABR is more detailed and has a smaller margin of error. He had normal results on the ABR, so we thought we weren't dealing with hearing loss. He started getting ear infections. He got one that didn't respond to Amoxicillin so we tried Omnicef. When that didn't work he was given Rocephin injections which cleared up the infection, but not the fluid. Then, when I was brushing his teeth one night I realized he had a severe frenulum(the connection between the top lip and gums) tie. It suddenly clicked for me that he had had a shallow latch when breastfeeding the entire time, and that it was because of the frenulum tie. At our next appointment, the pediatrician sent us to a different ENT for a consultation about the frenulum tie, the persistent fluid on his ears, and the failed OAE's. Dr. Ostrower said that he most definitely needed tubes put in his ears to get rid of the fluid and that he would do the frenectomy at the same time. On May 23 he had the surgery. He wasn't in the OR long, and we had him home by the afternoon. Breastfeeding immediately became easier for him, and his latch was much better. He also started going longer in between nursings because he was getting fuller because of the proper latch. After we got back from Texas we had a follow-up visit with the ENT and audiologist. All of us (the doctors included) thought that he would pass the OAE testing with the tubes in place, but he didn't. Because of this, we were told he would need another ABR test done and that he would need to be sedated. Last Thursday I took him for his sedated ABR. It revealed that he has mild-moderate mixed (both sensorineural and conductive) in his R ear and mild hearing loss in his L ear. He will need a hearing aid for the R ear, and most likely will need speech therapy to ensure that his speech and language develop normally. We have an appointment with his regular audiologist and Dr. Ostrower on the 27th and will know more about what we need to do from here. As of right now we have no idea why he has the hearing loss. We are heartbroken, but are determined to do all that we can to advocate for him and get him whatever he needs to excel in life.
Anderson has been the perfect addition to our family, and we can not imagine life without him. I am so very blessed to be his mommy. Happy Birthday, my darling boy! I love you through and through.
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