Thankfully, Everett is in much less pain now than when I last wrote. None of us slept much, but today is a new today, and hopefully we will all get some much needed rest. Everett's intracardial wires were removed earlier in the day. His morning labs revealed low calcium levels, so they have given him some to bring those levels up. He is on less oxygen than before, and his saturations are still pretty good, so we are on our way to being completely off of the oxygen. He had the central line in his neck removed as well as the catheter in his bladder, and the art line in his leg. He is hooked up to 5 chest leads, 2 chest tubes, pacemaker wires, and 2 IV's only now which sounds like a lot but is much less than we started out with. He is able to drink now and eat whenever he is ready. We can hold him, and he has been feeling much better since we've been holding him. He is now resting comfortably in his Daddy's arms. During rounds earlier we were told that we were moving up to a regular room, but Dr. Guleserian wants him to stay in ICU one more night. Hopefully tomorrow we will move upstairs.
James Everett was born September 13, 2007 with several heart defects that were not detected prenatally: Pulmonary Atresia (PA), Double-Inlet Left Ventricle (DILV), and Levo-Transposition of the Great Arteries (L-TGA). For more information on these defects you can visit these links: https://health.google.com/health/ref/Pulmonary+atresia https://health.google.com/health/ref/Double+inlet+left+ventricle He had his first open heart surgery, the Blalock-Taussig shunt, on September 25th when he was 12 days old. Just 10 days later on October 5, Everett had to be taken back into the OR to drain off the fluid that had accumulated around his heart that could not be diuresed with medication. In January '08 he had his Glenn procedure, and in March '09 he had his Fontan procedure. After these four open heart surgeries he is doing wonderfully!
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