Today marks one year since Everett's last open heart surgery. So much has changed in a year. We're currently in the process of moving so I can't post pictures because I have no idea where the cord that connects the computer to the camera is. We're moving to a duplex in the same town that we already live in. The best part is that E has a big backyard to play in.
My little baby is now a big boy. Everett turns 2 1/2 years old tomorrow on the 13th. He is talking up a storm. Everett is quite opinionated and is not afraid to tell anyone what he wants. When he wakes up in the mornings he shouts from his room, "Mommy, Daddy, I get OUT!!!" until we come and get him out of his crib. He loves being outside, and is crazy about his Daddy. He recognizes the Fox 16 logo on the TV and tells people that "Daddy works at Fox 16."
From a heart standpoint, everything looked good at his last appointment which was in December. It has been almost six months since his last echocardiogram, so I'm curious as to what we'll find out in April. He has been very out of breath lately and his legs and arms take on a dusky color pretty often. His oxygen levels have been great, though. When we left the hospital last March, Everett was on a whole host of medications. Over the past year we have weaned him off of most of them, and now we're left with Enalapril, Aspirin, and a daily vitamin. He will be on these three indefinitely. We are so grateful that he is doing so well and know that we are truly blessed to have him in our lives.
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James Everett was born September 13, 2007 with several heart defects that were not detected prenatally: Pulmonary Atresia (PA), Double-Inlet Left Ventricle (DILV), and Levo-Transposition of the Great Arteries (L-TGA).
For more information on these defects you can visit these links: https://health.google.com/health/ref/Pulmonary+atresia
https://health.google.com/health/ref/Double+inlet+left+ventricle
He had his first open heart surgery, the Blalock-Taussig shunt, on September 25th when he was 12 days old. Just 10 days later on October 5, Everett had to be taken back into the OR to drain off the fluid that had accumulated around his heart that could not be diuresed with medication. In January '08 he had his Glenn procedure, and in March '09 he had his Fontan procedure. After these four open heart surgeries he is doing wonderfully!
For more information on these defects you can visit these links: https://health.google.com/health/ref/Pulmonary+atresia
https://health.google.com/health/ref/Double+inlet+left+ventricle
He had his first open heart surgery, the Blalock-Taussig shunt, on September 25th when he was 12 days old. Just 10 days later on October 5, Everett had to be taken back into the OR to drain off the fluid that had accumulated around his heart that could not be diuresed with medication. In January '08 he had his Glenn procedure, and in March '09 he had his Fontan procedure. After these four open heart surgeries he is doing wonderfully!
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